by c4cfadmin | Jul 6, 2023 | News
CF Parent Update Jen’s top tips for the early years as a CF parent Last month I sat down with our newest Community Ambassador Jen to talk about the things she wishes she had known in 2019 when she became a CF parent. Becoming a CF Parent Jen’s daughter Aveline was...
by c4cfadmin | Jun 2, 2023 | News
Research Update Exciting advancement in personalised treatment Cure4CF is funding a cutting-edge study in personalised bacteriophage treatment in CF, so what’s it all about? What are bacteriophages? Bacteriophages or phages for short, are viruses that specifically...
by c4cfadmin | Dec 19, 2022 | News
Trikafta Update Pharmaceutical Benefits Advisory Committee (PABC) Trikafta Outcome Cure4CF will not rest until there is a cure for everyone with CF. We are thrilled the Pharmaceutical Benefits Advisory Committee has recommended the inclusion of Trikafta on the...
by c4cfadmin | Oct 11, 2020 | News
Ambassador Update – Mae Our Youth Ambassador, Mae has kindly given us an update on how school has been for her this year as she completes year 12 and on going to her school formal. School as a CF patient has been crazy this year. It has been much more...
by c4cfadmin | Oct 7, 2020 | News
Fundraising Ideas Facebook Fundraiser – Create a fundraiser for Cure4 Cystic Fibrosis on Facebook. Set a goal and encourage your friends to support a great cause. Quiz Night – Organise a quiz night. Invite friends and family and organise a fun night with a quiz,...
by Amy Hourigan | Jul 1, 2020 | News
Jonathan Despinidic Takes Over Cure4CF Jonathan Despinidic Jonathan Despinidic, or JD, was looking at a very short life expectancy after being diagnosed with cystic fibrosis at the age of 13. Now at 33 years old, he is one of only 653 adults living with CF over the...
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