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Life expectancy and the modulator era for CF

Life expectancy and the modulator era for CF

Cure4CF Update  Life expectancy and the modulator era for CF What does life expectancy mean? Life expectancy is a commonly used measure and reflects the mortality level of a population.   It is calculated from age specific death rates and measures how long a person is...
Life expectancy and the modulator era for CF

What is Aquagenic wrinkling and what does it mean in CF?

Cure4CF Update  What is Aquagenic wrinkling and what does it mean in CF?  Last year one of our ambassadors contacted me curious about aquagenic wrinkling they had observed.  I had never heard of the condition and was curious to learn more. Aquagenic wrinkling is rare...
Life expectancy and the modulator era for CF

Taste and bacterial infection in CF

Cure4CF Update  Taste and bacterial infection in CF Our Ambassador Olivia Wood recently shared with me her observation that she can notice a change in taste when she has different lung infections.  This made me curious and so I went to check out the research to see...
Life expectancy and the modulator era for CF

What makes Cure4CF Unique?

Cure4CF Update  What makes Cure4CF Unique? The Cure4CF Foundation (Cure4CF) established in 2009 is part of the global community working to develop a cure for everyone with Cystic Fibrosis (CF).  In  Australia, we offer a unique approach to fundraising and supporting...